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Title: Intorduction
Description: Narcolepsy w/o Cat


Pinky - November 27, 2009 09:03 PM (GMT)
I was just diagnosed with N last month. I am a 39yr old female, married with boys 15,8. Wow I would have never believed that I had N if someone said that is what I have. I always thought of N as just falling asleep while talking, driving, sitting etc.
I have been tested and have the Narc gene marker. I have been dealing with this looking back for the last 25 yrs. I too as many of you have been accused of just being LAZY. I am so tired no pun intended of hearing that word. Thank the lord I do not have the cataplexy. I can remember falling asleep in jr high on the toilet after track practice. I was always exhausted and exercise made it worse. In college I would sleep in class everyday after lunch or I would schedule my classes so I would not have a class after lunch so I could take a nap. I would take a nap anytime I could before dinner. But I could stay up till the sun came up if needed. I earned a degree in Medical Technology and after two yrs of working in a lab doing repetitive work and doing everything I could to stay awake, I left the lab and went to a Dr. office. The continual movement helped me get thru the day.
I have just thought I just required a lot of sleep. Thankfully my children were great sleepers or I do not know how I would have survived. I have slept in my car during lunch, before going into work and then when I would get home. The times in the car when I would think " if I could just pull over on the side of the road and sleep for 10 min would be soo great" .
I have thought for the last 10yrs that something in my house was making me sick/sleepy b/c when I am away from my house for 24hrs. I seem to be a new person. I would be sleeping in a different bed doing something exciting usually and no have all the worries of home or work. [SIZE=1]I would return home and the next morning back to "sleepy town".
Mornings are the worst!!! I hate and dread mornings that I have to be up before 8:30am.
I like many of you have been diagnosed with fibromyalgia & depression. Stress and emotional trauma from death has really increased the problem. I was also diagnosed with ADD after going thru all the stuff with my son and answering the questions the same as him. Thank goodness for Adderall that has been the only way I have made it thru the day. I didn’t take it every day, so the days I didn’t take it I slept all day.
I have hidden this horrible part of my life pretty well from everyone. Its not something to go around and talk about that you are sleepy all the time and feel terrible. I am a very social person and try to be as positive as I can and not complain.
My family well...., my mother has not brought the topic up at all since I told her my diagnosis, said I must have had it since birth b/c I have always slept a lot. That is the only thing she has said. My husband for some reason will not read anything about this just what I tell him. My best friends are the most comforting and understanding.
I was started on NuVigil 150 and just started the 250 along with Pristique. So far so good.
Well I have written a book so sorry, but I need support to make it through. Thanks to Fusion Sleep Center in Duluth, GA, I may have my life back.

PinkySleepyinGA

Toph4er - November 30, 2009 09:41 AM (GMT)
Hey Pinky!

Interesting that you mention the whole "sleepy town" thing, because I find I sleep, and especially wake up better, when I am away from home. Maybe it's just a psychological thing...I know N controls a lot of our sleep, but I'm far from convinced that it is the ONLY factor involved.

I too am about to try Nuvigil (starting tomorrow!) so keep me updated with how it goes for you and I shall do the same. On a side note, what is Pristique? I've never heard of it before.

Chris"Toph4er"




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