Free Forums with no limits on posts or members.
InvisionFree - Free Forum Hosting
Welcome to Manage Meniere's UK Support Group. We hope you enjoy your visit.
You're currently viewing our forum as a guest. This means you are limited to certain areas of the board and there are some features you can't use. If you join our community, you'll be able to access member-only sections, and use many member-only features such as customizing your profile, sending personal messages, use of the Library and access to Employment Questions. Registration is simple, fast, and completely free. You will receive a validation email in order to complete registration.
Join our Community!
If you're already a member please log in to your account to access all of our features:

Name:   Password:


 

 Bppv, vertigo
got2b
Posted: Jul 19 2012, 10:17 AM


Newbie


Group: Members
Posts: 7
Member No.: 165
Joined: 14-July 12



Hi my name is Angel, have suffered with BPPV for years any one else have this debilitating curse.
Top
Barbara
Posted: Jul 19 2012, 10:24 AM


Administrator


Group: Admin
Posts: 1,443
Member No.: 1
Joined: 5-February 11



Hi Angel,
Welcome to the group.

BPPV is a pain isn't it. I have turned over in bed so many times and ended up dreaming I was spinning only to wake and find that I was.
Have you had the Epley Manoeuvre ? Many people get good relief from this but it does need repeating from time to time.

Barbara x
Top
got2b
Posted: Jul 19 2012, 10:51 AM


Newbie


Group: Members
Posts: 7
Member No.: 165
Joined: 14-July 12



QUOTE (Barbara @ Jul 19 2012, 10:24 AM)
Hi Angel,
Welcome to the group.

BPPV is a pain isn't it. I have turned over in bed so many times and ended up dreaming I was spinning only to wake and find that I was.
Have you had the Epley Manoeuvre ? Many people get good relief from this but it does need repeating from time to time.

Barbara x

Thanks for your reply, you name it i have had it. Have had BPPV for many years been in hospital many times, due to collaspse. Last visit June 2012, still got styptoms. Had this episode since March 2012 I feel unbalanced 24/7 nausea - muzzy head & ears, hearing loss. I am doing Brandf- Daroff exercises.
Top
Kath
Posted: Jul 19 2012, 06:02 PM


Senior Member


Group: Moderators
Posts: 439
Member No.: 8
Joined: 6-February 11



Hi Angel
Welcome to the forum. Sorry to hear that you are plagued with BPPV. I have definitely had something akin to BPPV leading up to a bad cluster episode of attacks earlier this year. Dizzy on looking up every time and turning in bed. The Epley manoevre was deemed unsuitable for me though and I resorted to more gentamicin treatment in the end which has been the solution in my case.

Do the Brandf- Daroff exercises help you at all?

best wishes
Kath
Top
got2b
Posted: Jul 19 2012, 09:02 PM


Newbie


Group: Members
Posts: 7
Member No.: 165
Joined: 14-July 12



QUOTE (Kath @ Jul 19 2012, 06:02 PM)
Hi Angel
Welcome to the forum. Sorry to hear that you are plagued with BPPV. I have definitely had something akin to BPPV leading up to a bad cluster episode of attacks earlier this year. Dizzy on looking up every time and turning in bed. The Epley manoevre was deemed unsuitable for me though and I resorted to more gentamicin treatment in the end which has been the solution in my case.

Do the Brandf- Daroff exercises help you at all?

best wishes
Kath

Hi Kath, have started doing Brandt -Daroff - they have helped but i still feel unbalanced, muzzy head & ears, been like this since March. Normally only last a week. Do you faint?
Angel
Top
Kath
Posted: Jul 21 2012, 04:22 PM


Senior Member


Group: Moderators
Posts: 439
Member No.: 8
Joined: 6-February 11



Hi Angel,
no I don't faint, thank goodness
Kath
Top
got2b
Posted: Jul 22 2012, 09:31 AM


Newbie


Group: Members
Posts: 7
Member No.: 165
Joined: 14-July 12



Hi Kath, so pleased you don't, i am still doing the BD exercises, need to do 52 sets in total. In most people complete relief from symptoms is obtained after 30 sets, i have done 20 sets so far so fingers & toes crossed, i will be one of them. BD has helped. Good sign, some times i look up with out getting virtigo thats a 1st in months, so thats a big bonus, :D . Have you tried these exercises? I had the Epley manoeuver done on 20th June, but did't start BD until 12th July.
I have had EM done in previous years, but this is the first time i have tried BD.
Angel
Top
Barbara
Posted: Jul 22 2012, 09:40 AM


Administrator


Group: Admin
Posts: 1,443
Member No.: 1
Joined: 5-February 11



For anyone unsure of what the Brandf-Daroff exercise is the following video might help. Is this what you do Angel. I have experience of VRT but not BD.

http://www.youtube.com/watch?v=hhinu_oU_hM

Barbara x
Top
got2b
Posted: Jul 23 2012, 08:40 AM


Newbie


Group: Members
Posts: 7
Member No.: 165
Joined: 14-July 12



QUOTE (Barbara @ Jul 22 2012, 09:40 AM)
For anyone unsure of what the Brandf-Daroff exercise is the following video might help. Is this what you do Angel. I have experience of VRT but not BD.

http://www.youtube.com/watch?v=hhinu_oU_hM

Barbara x

Hi Barbara, yes as i said they have helped, at first BD exercises make you feel even worse, I would suggest watch video several times, to make sure correct position very important. & do BD exericise before bed for the first time, then go onto twice aday, i found they have helped me, got 12 sets to go until finished course, will let you know outcome, wish i had tried these before, have suffered with BPPV for years. have not felt this well in weeks.
Avril :D
Top
« Next Oldest | Introductions | Next Newest »
DealsFor.me - The best sales, coupons, and discounts for you

Topic Options



Hosted for free by InvisionFree* (Terms of Use: Updated 2/10/2010) | Powered by Invision Power Board v1.3 Final © 2003 IPS, Inc.
Page creation time: 0.0831 seconds | Archive